- More than 50 avatars (need to be on 2 sims) dancing for a big, big fiesta ! - More than 6 hours of music for Multiple Sclerosis.
posted by Daneel Ariantho on MS Island VUmc using a blogHUD : [permalink]
Multiple sclerosis (MS) is one of the most prevalent diseases of the central nervous system (brain and spinal cord) and directly affects an estimated 2.5 million people around the world. Myelin, one of the fatty substances that sheathe, insulate and protect nerve fibres, aids the rapid transmission of nerve signals throughout the body. It is the speed and efficiency with which these impulses are conducted that permits smooth, rapid and co-ordinated movements to be performed with little conscious effort. MS attacks this myelin, disrupting the ability of the nerves to transmit signals to and from the brain and producing the various symptoms of MS. The sites where myelin is lost (plaques or lesions) appear as hardened (scar) areas. In MS these scars appear at different times and in different areas of the brain and spinal cord.
Quick facts • More women than men have MS, with a ratio of two men to three women affected. • Sclerosis means scars; these are the plaques or lesions in the brain and spinal cord. • MS is not directly hereditary, although genetic susceptibility plays a part in its development. • MS is not contagious. • There are a wide range of symptoms including fatigue, balance and co-ordination problems and visual and cognitive disturbances. • There is no drug that can cure MS, but treatments are now available which can modify the course of the disease.
The ant Pat had post on his blog about MS in SL. So I remember I was gone on MS Island VuMC few months ago, taking a look at this new healthcare place on the Main Grid “Agni” (Linden Lab).
This sim is the island of VU university medical center and the MS Center Amsterdam.
This is a pilot project to see if a virtual world and community can have a positive influence on the wellbeing of people with MS.
This project is a cooperation of: - VU university medical center - MS Center Amsterdam - MSWeb - Dutch MS Research Foundation - Dutch MS Society (MSVN) - Multiple Sclerosis International Federation (MSIF)
In the main building there is more information about
these organizations, a meeting room for people with MS and other interested parties, and a presentation and consultation room.
Nearby is now a place for the upcoming party.
We met there gezellie Tigerpaw , Byker Kondor, the noob (out of the photo), and Maarten Supercharge, the webmaster of www.msweb.nl.
The invitation :
*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Ladies and gentlemen!! We are proud to present the final line-up for the “Global Dinner Party” benefit concert on saterday february 23th. We start at 19:00 uur West-European time (18:00 uur GMT, 1:00pm in New York and 10:00am SLT). The program looks like this (times are SLT): 10:00am Opening by house-deejay, DJ Maarten Supercharge 11:00am Live concert by Carmen Roeth from the Netherlands, who will sing for 2 hours! 01:00am Live concert by Nikita Lumet from the Netherlands 02:00pm Live concert by Grateful Stryker from the United States 03:00pm “Rock with DJ Pre” The gaps between the performances will be filled by DJ Pre
DO NOT MISS THIS MEGA LIVE EVENT WITH MORE THEN 6 HOURS OF LIVE MUSIC!!
Come to the podium at MS Island VUmc SLURL : MS Island VUmc (141,184,2 *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* *The MS Island VUmc is an initiative of the University of Amsterdan VU Medical Centre. Involved are the MS Centre Amsterdam, MSweb, MS Society Netherlands, the MS Research Foundation and the International MS Federation (MSIF). *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*
[Fr]
Selon Wikipédia, La sclérose en plaques (abrégée de manière courante en “SEP”) est une maladie neurologiquechronique et souvent invalidante. Elle est multifactorielle et ses manifestations cliniques sont liées à une démyélinisation des fibres nerveuses de la substance blanche du système nerveux central (cerveau, moëlle épinière et nerf optique). Elle touche environ 80 000 personnes en France (prévalence), et environ 2 000 personnes de plus par an (incidence). 70 % des nouveaux patients sont de jeunes adultes entre 20 et 40 ans, dont près de deux tiers de femmes. C’est une importante cause de handicap.
La fourmi Pat a mis sur son blogue un billet intitulé “la SEP dans Second Life“. Du coup, je me suis souvenu que j’étais allé sur MS Island VuMC il y a quelques mois déjà, simplement pour découvrir ce nouveau lieu concacré à la santé sur la Main Grid “Agni” de Linden Lab (Il va falloir prendre l’habitude de préciser les Grids maintenant qu’OpenSim est là).
Cette sim est l’île du centre médical universitaire de Vu et du Centre SEP d’Amsterdam.
C’est un projet pilote réalisé pour explorer si un monde et une communauté virtuels peuvent avoir une influence positive sur le bien-être de personnes atteintes de SEP.
Ce projet est le fruit de la coopération : - du Centre Médical Universitaire de Vu - du Centre SEP d’Amsterdam - de MSWeb - de la Fondation Hollandaise pour la Recherche sur la SEP - de la Société Hollandaise sur la SEP (MSVN) - let de la Fédération Internationale sur la SEP (MSIF)
Le bâtiment principal dispose de plus amples informations sur ces organisations, ainsi bien sûr d’une salle de rencontres et d’une salle de consultation et présentation.
Non loinde là se tient le lieu prévue pour la soirée.
Lawrence et moi_même avons rencontré sur les lieux des volontaires : gezellie Tigerpaw, Byker Kondor, le noob, et Maarten Supercharge, l’administrateur du site ww.msweb.nl.
L’invitation :
*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Mesdames et messieurs!!
Nous sommes fiers de présenter le programme final du concert au profit de la “Global Dinner Party” le samedi 23 Février. Nous commençons à 19h00, heure d’Europe occidentale, 18h00 GMT, 1:00 PM à New York et 10:00 AM SL Time).
Le programme se décompose ainsi (les horaires sont en SL Time) : 10h00 Ouverture par house-deejay, DJ Maarten Supercharge 11h00 Concert en direct par Carmen Roeth des Pays-Bas, qui va chanter pendant 2 heures! 01h00 Concert en direct par Nikita Lumet des Pays-Bas 02h00 Concert en direct par Grateful Stryker en provenance des États-Unis 03h00 “Rock avec DJ Pre” Les intermèdes musicaux entre les différents événements seront assurées par DJ Pre. NE MANQUEZ PAS CE MEGA EVENEMENT EN DIRECT DE PLUS DE 6 HEURES DE MUSIQUE LIVE!
Venez jusqu’au podium sur MS Island VUmc SLURL : MS Island VUmc (141,184,2 *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* *Le MS Island VUmc est une initiative de l’Université d’Amsterdan VU Medical Centre. Sont également impliqués le MS Centre d’Amsterdam, MSweb, La Société SEP Netherlands, La Fondation pour la Recherche sur la SEP et la Fédération Internationale sur la SEP (MSIF). *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*
iVAS is a group of surgeons and scientists who want to change the way scientific communications are currently conducted. They will organise conferences entirely within the virtual world of Second Life. This lowers the cost of attending, negates the need to travel and creates novel surgical research networks across the world.
The inaugural iVAS conference will occur on the 22 April 2008.
one of the AMMC students, Vera Zhaoying will give a short talk about the impact of SL and the AMMC on her medical training. We are very fortunate to have Vera as a student and her visions for the center. She has developed the AMMC Women’s Health Center, both for RL patients and for Medical training.
I also will be introducing Davis Stastny, the Sprott-Shaw College manager and without whose wonderful assistance the AMMC would not exist as it does today. Sprott-Shaw has supported the vision so completely and I would, personally, like to thank Davis and the College President for their vision and assistance in the development of this training program. Davis will be speaking to you in a few moments about the utilization of SL from a college perspective.
Lastly, I have asked Randal Moss of the American Cancer Society to give a discussion of the opportunities available for organizations like the ACS within SL. he ACS has an area within SL, which is utilized by many, many cancer survivors.
Poppy Zabelin was going to be speaking to you on behalf of the Cancer Survivor group. Unfortunately, something occurred at the last moment and she was forced to change her plans. http://www.cancer.org/slrfl
Notes from World AIDS Day Workshop given at Healthinfo Island, Second LifeDecember 1, 2007
MEDLINEPLUS.GOV
- MedlinePlus is a portal site to lots (and lots!) of top-quality resources created by national associations, such as the American Heart Association.
- You can search for terms, or find information by using the categories listed on the main page.
- Features of MedlinePlus include a dictionary, directories of healthcare professionals, information about drugs and therapies, health news, and even video tutorials.
[9:03]Carolina Keats: so - to all - if you haven’t been here before – welcome to Healthinfo Island, and to the celebration of World AIDS Day!
[9:03]Carolina Keats: or if you have
[9:04]Carolina Keats: I’m a consumer and medical librarian, and coordinator for HealthInfo Island, a project funded by National Library of Medicine.
[9:04]Carolina Keats: The project has an objective of supporting the health information needs of SL residents.
[9:04]Carolina Keats: Anyone can come here or IM me with a health question, and I will search for information. There is never a charge for this service.
[9:04]Carolina Keats: Before we get going, I want to point out that I’ve got some displays and handouts set up here.
[9:04]Carolina Keats: Check between the benches and you’ll find a handout I’ve prepared for the class that provides you links to the resources used today and some other tips I hope will be useful for all information – not just health, and not only online.
[9:05]Carolina Keats: The sign to my right lists a schedule of classes given here – and I’m planning others, including a series about searching PubMed.
[9:05]Carolina Keats: Today I’m planning to begin by checking out Google, especially their new Beta project
[9:05]Carolina Keats: Then we’ll move on to MedlinePlus, looking at some of the features of that site.
[9:05]Carolina Keats: As we go, I’ll be asking everyone to explore a bit, then come back to share what they found.
[9:05]Carolina Keats: Questions people have about AIDS, as with other health topics, range from the basic to more complex or ‘advanced’ levels.
[9:06]Carolina Keats: Examples might range from ‘what is AIDS’ or ‘how is it diagnosed’ to how one would go about finding a support group, what kind of clinical, experimental research is going on, or particular information about statistics or regional services.
[9:06]Carolina Keats: The resources we’re looking at today are ‘doorway’ resources, and best suited to basic and intermediate level questions.
[9:06]Carolina Keats: I will say now, and repeat later, that I am here to assist people with questions at all of these levels.
[9:06]Carolina Keats: If I was pressed to characterize consumer health librarianship, I would say this: we are here to strengthen and empower the health consumer (and of course, we are ALL ‘consumers’ of healthcare).
[9:06]Carolina Keats: If you have questions, about AIDS/HIV, or other health concerns, I am available for individual consultation. However, I am not a health professional. I’m an information professional.
[9:07]Carolina Keats: This means I’m not qualified to diagnose or treat, but consider myself your partner AND the health professional’s partner - able to find good quality information for you and for the healthcare team.
[9:07]Carolina Keats: Meanwhile, we can share this knowledge before us – and jump in to exploring these resources.
[9:07]Carolina Keats: Is everyone able to open a browser window as well as the Second Life window?
[9:08]Carolina Keats: Here, of course, is Google.com, which as far as I know is still the search engine that indexes the most web pages of any search engine on the internet.
[9:08]Carolina Keats: If you are not aware of this, I’d like to share with you the information that NO search engine indexes more than around 20-30% of internet web pages.
[9:08]Carolina Keats: It’s super-easy to type in a term like ‘hypertension’ and hit enter – millions of people do searches in just this way, every day (and I do, too – it works).
[9:08]Carolina Keats: If you’re finding what you need by doing this, it just doesn’t make much sense to do a whole lot more.
[9:08]Carolina Keats: Well, but – 221 MILLION results? Where do we start?
[9:09]Carolina Keats: I’ll begin with a look at some features of Google, which I and lots of others use for searching the internet.
[9:09]Carolina Keats: You know, I could easily spend an hour on just Google, or just MedlinePlus, and we’d only be scratching the surface –
[9:09]Carolina Keats: So please, be aware that the information today is really a sort of ‘over the top’ view of SOME of the features and tools available through those resources.
[9:10]Carolina Keats: I’ve asked people to open a browser window because we’ll be doing a little hands-on exploration as we go
[9:10]Carolina Keats: I was really intrigued, though to see what Google’s doing with a beta project and took time to explore – we’ll take a look at that
[9:10]Carolina Keats: before moving on to MedlinePlus.gov, a great portal site that leads to a lot of high quality information.
[9:11]Carolina Keats: Check out this very new feature – providing a categorized table of links. This can save you lots of time.
[9:11]Carolina Keats: But I did find, looking at what’s grouped under the links, that all sorts of content is included.
[9:11]Carolina Keats: This slide shows just a straightforward search for the term ‘aids’ and its categories, but there’s more happening if you just look for it -
[9:12]Carolina Keats: This all appears to be part of Google’s new beta for health, which uses extended categories.
[9:12]Carolina Keats: here, though, I’m showing the tagging they’ve begun to do
[9:12]Carolina Keats: labeling things with content provider information and things that can help you know if the site providers comply with quality standards, like HON
[9:13]Carolina Keats: which is just one of these standards, voluntary quality compliance that requires the listed things - that you see here on this slide
[9:13]Carolina Keats: Going to that beta site, we see an expanded version of the categories – and more.
[9:13]Carolina Keats: I see this is rezzing slowly
[9:14]Carolina Keats: When I did a search for the term ‘aids’ this time, I noted that the top results are provided by organizations such as the CDC.
[9:14]Carolina Keats: look at the extended categories!
[9:14]Carolina Keats: take 2 minutes now to go to this link - www.google.com/coop/topics/Health
[9:15]Carolina Keats: it’s ok if you can’t - if not, you can go later and poke about
[9:16]Carolina Keats: I suggest you glance through the text listed under ‘health,’ review the category list, take a look at the contributors list by scrolling down.
[9:16]Carolina Keats: Or you can do a search if you’d like, paying attention to where the information’s coming from.
[9:18]Nadezda Markova: is this the custom search service, that you wanted us to look at?
[9:18]Carolina Keats: great - nadezda, did you see anything you can share?
[9:18]Carolina Keats: this is the new google beta for health
[9:19]Nadezda Markova: I wasn’t quite sure, but the information seems to come from reputable participants
[9:19]Carolina Keats: yes
[9:19]Carolina Keats: Looking into this a bit more deeply, I found that Google has partnered with the CDC and other reputable organizations to link and label quality health information so that we, as searchers, can more easily find it.
[9:19]Nadezda Markova: I wondered how much you only get the standard answers, while nonstandard answers, some of which might be useful, get filtered out?
[9:19]Carolina Keats: do you mean, more tailored information?
[9:20]Nadezda Markova: well,, yes
[9:20]Carolina Keats: yes - these resources are probably best for introductory and intermediate level questions
[9:20]Nadezda Markova: the sort you get that tends to be somewhat similar on all sites and gives you the fundamentals ,but doesn’t take you much further
[9:20]Carolina Keats: disease descriptions, - right
[9:21]Carolina Keats: but you are going to have trouble finding tailored info (reputable tailored info, that is) anywhere except something like pubmed
[9:21]Starlight Vandeverre is Online
[9:21]Nadezda Markova: is medline available on that part of google?
[9:21]Carolina Keats: they can lead you to organization pages where further info is available
[9:21]Carolina Keats: you know, I’m not sure
[9:21]Carolina Keats: I didn’t see it
[9:22]You: Google Scholar leads you to pubmed results
[9:22]Carolina Keats: this beta’s so new - we need to do some more exploration
[9:22]Nadezda Markova: Google scholar is a good element
[9:22]Nadezda Markova: how do you get to the beta?
[9:22]Carolina Keats: there are some very interesting things happening
[9:22]Carolina Keats: if you get a notecard from the poster between the benches, the beta site’s one of those listed
[9:23]Carolina Keats: something more I noticed – new since the last time I taught about the Google beta for health.
[9:23]Carolina Keats: I use Google’s email and a number of their other tools, so I was signed in to that while I was preparing for the class.
[9:23]Carolina Keats: I had never seen the ‘NOTE THIS’ feature so checked it out -
[9:23]Carolina Keats: They’ve integrated this new tool with all the google searching, so now I can create a listing of good things I’ve found while I’m searching!
[9:24]Carolina Keats: second, I am not talking about it today, but in the class I teach called ‘Looking for Health,’ I discuss Google’s advanced search features.
[9:24]Carolina Keats: For those who use it, it appears that there is a limited ability to combine advanced search features with the Google beta search –
[9:24]Carolina Keats: after you have already done your search, you will notice that the ‘regular’ search box shows up, giving you the option of an advanced search.
[9:24]Carolina Keats: I tested this by requesting that my retrieval results be limited to only sites whose URLs ended in ‘.gov’ (governmental sites) and this was successful, bringing up .gov sites that categorized with the new beta subjects.
[9:24]Carolina Keats: This is potentially an extremely powerful tool
[9:24]Carolina Keats: I know I haven’t covered all of them, but I do suggest that when you can, you take time to check out the new beta – you never know when it’ll come in handy, and save you time and frustration.
[9:24]Carolina Keats: Don’t be surprised to see frequent changes
[9:25]Carolina Keats: I’m moving on to medlineplus.gov now, does anyone have any other comments about this resource before I do?
[9:26]Carolina Keats: MedlinePlus.gov is what is called a ‘portal’ site, in that it’s a web page that acts as a doorway to lots and lots of other information.
[9:26]Carolina Keats: though it is very US-centric
[9:26]Carolina Keats: It’s created by the National Library of Medicine and the National Institutes of Health, 2 reliable and credible sources of health information.
[9:27]Carolina Keats: and by the way, there are some international AIDS links listed in that handout, because we’re aware that this is so US focused
[9:27]Carolina Keats: Like Google – MedlinePlus is way too extensive for us to thoroughly explore all the incredible features.
[9:27]Carolina Keats: However, I will point out a few, and again, suggest that you bookmark the site, then take a few minutes on your own to explore – it may save you time later on, when you need it.
[9:27]Carolina Keats: Taking a look at the main page, note the following: - a search is available right up top - the listing on the left side serves as a topical index to whole collections of information
[9:27]Carolina Keats: if it comes up!
[9:29]Carolina Keats: there, it’s rezzed for me - can you see?
[9:29]Carolina Keats: there is SO much in this portal site
[9:30]Carolina Keats: they’ve made a number of improvements
[9:30]Carolina Keats: including their organizational scheme
[9:30]Carolina Keats: anyone who’s done a webpage knows it’s hard to second-guess the user
[9:30]Carolina Keats: since everyone will look a different way
[9:31]Carolina Keats: great - as I said, check out the search box
[9:31]Carolina Keats: and the list of the categories running down the left side
[9:31]Carolina Keats: clicking on ‘Health Topics’ takes you here – see how it’s organized? You can look for broader information (for example, ‘Brain and Nerves’) if you don’t know a more specific topic
[9:32]Carolina Keats: - notice the options on the lower right, for easy to read resources, for those with vision problems, and to tutorials.
[9:34]Carolina Keats: There are at least 3 different ways to find information using MedlinePlus, which I’m showing here
[9:34]Zsuzsa Tomsen is Offline
[9:34]Carolina Keats: 1) You can use the basic search engine, which you’ll find at the top of every page in this site.
[9:34]Carolina Keats: Please note, though, that you’re likely to bring up a whole lot of things, probably way more than you want or need.
[9:34]Carolina Keats: 2) Using the tabs on the site gets you to information in a particular topic area, such as Health News – and you can search within those results to narrow down what you want.
[9:34]Carolina Keats: 3) For a great general overview of a topic, though – like AIDS, I prefer to begin with the alphabetical listings.
[9:35]Carolina Keats: I’ve done that, going to the alpha listing for aids
[9:35]Carolina Keats: There is so much to look at for these listings that I would like to have everyone ‘take 2’ again to explore what comes up when you use the ‘A’ and scroll down to find the link for AIDS.
[9:35]Carolina Keats: Please explore that page, then come back to share what you’ve seen Here’s the URL: http://www.nlm.nih.gov/medlineplus/healthtopics_a.html
[9:36]Nadezda Markova: this is a really great resource
[9:36]Carolina Keats: it really is!
[9:36]Carolina Keats: as I said - I could do a class on just this and only cover the top level
[9:37]Carolina Keats: the modular flash tutorials are particularly helpful for those with vision or literacy problems
[9:37]Nadezda Markova: yes I was noticing those
[9:37]Carolina Keats: since they are self-paced, and there is a voiceover
[9:38]Carolina Keats: we’re just ‘taking 2′ to explore medlineplus.gov
[9:41]Carolina Keats: as I’d said, I’ve put a handout between most of the benches that includes the URLs we’ve begun to explore here.
[9:42]Carolina Keats: One of the features of that handout is a decision aid to health information, part of which is on this slide.
[9:42]Carolina Keats: These are directly related to something I talked about earlier, the idea that health information needs can be classified according to their ‘level’ of need.
[9:42]Carolina Keats: I have included here material types that are not solely limited to the internet, but also encyclopedias and other (potentially) paper-based resources.
[9:43]Carolina Keats: Medical librarians are available in many universities, and in many hospitals, not just here in Second Life, and we’re good at helping find information to help empower you in your search for health, as a partner to your healthcare providers.
[9:43]Carolina Keats: I hope it’s been interesting to check out what’s happening with Google’s new beta, with MedlinePlus.gov, and to see how these and other resources can help you find quality information in answer to your questions about AIDS as well as other health concerns.
[9:44]Carolina Keats: thank you so much for being here today!
[9:44]Nadezda Markova: thanks so much for a truly informative session
[9:44]Carolina Keats: I hope you’re planning to stick around - look at the displays, go to the presentations we’ve got
England’s National Health Service (NHS) is under review: The ‘Our NHS our future’ review.
The NHS is England’s publicly-funded healthcare system, providing the vast majority of healthcare in the UK, which is based on clinical need and not the ability to pay.
The Review provides an opportunity to ensure that the future of the NHS is clinically led and can meet the challenges of delivering healthcare over the next decade.
As a key component of the Review, on the 21st of November there will be an International Clinical Summit on pathways to care, where 1500 invited clinicians and physicians will be meeting in real life in London.
But you can follow the meeting in Second Life or via the webcast.
In Second Life you will be able to register your own opinions and meet and chat with the speakers.
This SL event will mainly be of interest to healthcare professionals, both within the UK and internationally.
Our Second Health Auditorium can accommodate up to 50 avatars. If there is sufficient demand we will open a second auditorium, and you can always follow the Summit’s live webcast outside SL if we are over-subscribed. Text chat will be logged, and we may record video and audio portions of the in-world event for later playback.
Dates and times
Greenwich Mean Time
21 November 2007, 14:20-18:45
Second Life Time (GMT-
21 November 2007, 06:20-10:45
To take part in the text chat with speakers in the main auditorium,
you will need to join the Second Health London group.
This will be explained at the overflow auditorium.
Agenda
14.20-14.30 Welcome and opening the event (CMO)
Overview of SHA engagement events (David Nicholson)
14.30-14.45 Objectives of the NHS Next Stage Review
14.45-15.00 Setting the scene - how to move the needle on health and health outcomes
15.00-16.00 Speaker Session One: High quality care across a healthcare system
David Levine from Montreal
Jack Cochran from Kaiser
Table discussion & questions
16.00-16.30 Tea Break (break in webcast)
16.30-17.30 Speaker Session Two: Examples of integrated care systems from abroad
Dr Schwartz from Westchester
Prof Schulte from Polikum
Table discussion & questions
17.30-18.30 Speaker Session Three: Examples of integrated care systems from UK
Dr O’Kelly from Tiverton
Dr Ian Rutter from Bradford
Table discussion & questions
AIDES is the french association against HIV and AIDS.
AIDES is a mix of 1)AIDS = SIDA in french and 2)Aide in french = support.
The opening event of this place will be december 1rst 2007.
